Inspiring Stories: Brittany Gooding
I’m 34 years old and have Chiari Malformation, Ehlers-Danlos syndrome, and Pseudotumor Cerebri. I have always been a clumsy kid, but starting in my 30’s I noticed it getting worse. I would frequently trip over my feet and my balance was off. ...
Inspiring Stories: Joe Hogan
As a child, Joe Hogan couldn’t jump and run like the other kids. He wasn’t sure why, and assumed he was weak in general. His experience with weakness in his legs matched that of his other family members. It wasn’t until his early 20’s that his aunt was diagnosed...
Inspiring Stories: Thea Currier
My name is Thea Currier, and I’ll be 60 years old this year. I have been active all my life with ice skating, lifting weights, hiking, going for long walks, and I’ve run two marathons. I am currently being treated for my 4th type of cancer (leukemia) and...
Inspiring Stories: Heather Collins
Throughout her childhood, Heather fell often, was clumsy, had lower leg and ankle weakness, and foot drop. These symptoms were overlooked, and she was never given an official diagnosis. It wasn’t until she was in her 30’s that she was told she had a hereditary...
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