Seth has always been extremely active – competing in Tough Mudders, weight- lifting, and running local races. That all changed when he had a stroke 3 years ago, which left him with weakness in his left arm and left leg. He had to learn how to walk and talk. They...
I’m 34 years old and have Chiari Malformation, Ehlers-Danlos syndrome, and Pseudotumor Cerebri. I have always been a clumsy kid, but starting in my 30’s I noticed it getting worse. I would frequently trip over my feet and my balance was off. ...
As a child, Joe Hogan couldn’t jump and run like the other kids. He wasn’t sure why, and assumed he was weak in general. His experience with weakness in his legs matched that of his other family members. It wasn’t until his early 20’s that his aunt was diagnosed...
My name is Thea Currier, and I’ll be 60 years old this year. I have been active all my life with ice skating, lifting weights, hiking, going for long walks, and I’ve run two marathons. I am currently being treated for my 4th type of cancer (leukemia) and...
Throughout her childhood, Heather fell often, was clumsy, had lower leg and ankle weakness, and foot drop. These symptoms were overlooked, and she was never given an official diagnosis. It wasn’t until she was in her 30’s that she was told she had a hereditary...
Madeline has Charcot-Marie-Tooth (CMT). As a result, she has had mild foot drop since she was in middle school. She first began experiencing more significant foot drop when she was 16. This was after she dislocated the patella in her right leg for the first time...
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