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Julie Stone
- CMTdefy -
Joined September 6, 2019
My Story
I have CMT (Charcot Marie Tooth) type 2A - it's a hereditary neuromuscular degenerative disease. I started having symptoms when I was about 6 yrs old, starting with foot drop and then weakening in my toes and feet. My doctors always recommended I get braces, but types that made it really hard for me to balance. It wasn't until I was a lot older, after going to a CMTA conference, where heard about all the amazing advances that Allard had done, that I was inspired to give AFOs a try. I was amazed at how much the Blue Rockers helped me out! I can't believe I didn't get them sooner!
I'm also making it a goal of mine to defy the stereotypes that come with disability. I feel like this was another a HUGE impact on why I didn't get braces right away. I'm hoping in the way I own my disability and live my life and share it with people I can change their negative associations that come with the words disabled and disability.
Diagnosis or Condition
Charcot Marie Tooth
Favorite Activities
Swimming, Team Sports, Weight Lifting/Strength Training, Other
Favorite Inspiring Quote or Mantra
"Don't limit your challenges, challenge your limits" ~Jerry Dunn